16p Genetic Syndrome Foundation

Informational Menu

(+1) 949-490-2972

Follow Us:

Facebook-f Twitter Youtube Instagram Linkedin-in

Please forgive us as our website is still under construction

Menu

Search for:

0

My Shopping Cart

No products in the cart.

$ Donation Amount:

• $10
• $25
• $50
• $100
• $250
• Custom Amount

Select Payment Method

• Test Donation
• Offline Donation
• Stripe - Credit Card

Personal Info

First Name *

Last Name

Email Address *

Terms

Acceptance of any contribution, gift or grant is at the discretion of the Alone Covid 19. The Alone Covid 19 will not accept any gift unless it can be used or expended consistently with the purpose and mission of the Alone Covid 19.

No irrevocable gift, whether outright or life-income in character, will be accepted if under any reasonable set of circumstances the gift would jeopardize the donor’s financial security.

The Alone Covid 19 will refrain from providing advice about the tax or other treatment of gifts and will encourage donors to seek guidance from their own professional advisers to assist them in the process of making their donation.

The Alone Covid 19 will accept donations of cash or publicly traded securities. Gifts of in-kind services will be accepted at the discretion of the Alone Covid 19.

Certain other gifts, real property, personal property, in-kind gifts, non-liquid securities, and contributions whose sources are not transparent or whose use is restricted in some manner, must be reviewed prior to acceptance due to the special obligations raised or liabilities they may pose for Alone Covid 19.

The Alone Covid 19 will provide acknowledgments to donors meeting tax requirements for property received by the charity as a gift. However, except for gifts of cash and publicly traded securities, no value shall be ascribed to any receipt or other form of substantiation of a gift received by Alone Covid 19.

The Alone Covid 19 will respect the intent of the donor relating to gifts for restricted purposes and those relating to the desire to remain anonymous. With respect to anonymous gifts, the Alone Covid 19 will restrict information about the donor to only those staff members with a need to know.

The Alone Covid 19 will not compensate, whether through commissions, finders' fees, or other means, any third party for directing a gift or a donor to the Alone Covid 19.

Show Terms Hide Terms

Agree to Terms?

Donation Total: $100

DONATE NOW

Advancing Knowledge and Support for 16p11.2 Deletion Syndrome

Join Our Cause

Providing support, promoting research, and championing hope for those affected by 16p11.2 deletion syndrome.

Get involved

Areas to Focus

We’ve organized the potential areas of concern into the following categories:

Medical

What kind of medical care will my child need?

Educational

What educational support will my child need?

Home

How to support my child in our home?

Caregiver

How to care for the caregiver to best serve my child?

What you will find on this website

An overwhelming amount of information. Take your time with it. We will start with the basics of DNA and Genetics; what potential associations we know of with 16p11.2 deletion syndrome; what possible therapies exist; what research exists with digestible explanations; tips and tools for a successful education career; what you can do in the home to help your child thrive; community building and individualized support for the caregivers; and celebrating the variation among all of us.

Dr. Nika Akid

Mother, Doctor and Founder
Dr. Nika Akid is an internal medicine doctor in primary care. Her favorite part of practicing medicine is to teach her patients about what is happening to them to empower them. When her son was diagnosed with 16p11.2 deletion syndrome at the age of 3, she found very little information and guidance to help her own family. After years of research and trial and error, she has had amazing results with her son. She has now dedicated her career to helping other families who are looking for answers.

Dr. Wendy Chung

Geneticist and Medical Director
Dr. Wendy Chung is chief of the Department of Pediatrics, Professor at Harvard Medical School, and President of the Children’s Hospital Pediatric Associates. She is also the leading expert on the topic of 16p11.2 deletion amongst many other rare genetic disorders both in research and practice. She is incredibly forward thinking and an advocate for this patient population and their families.

Caroline Pereira

Fundraiser and Director of Finance
Ms. Caroline Pereira is the associate vice chancellor for UCI Health Advancement. In addition to being a seasoned fundraiser in the field of academia and health care, she is a fierce advocate for patient care. She helps create communities that support to uplift one another with generosity and integrity.